This module discusses key principles, approaches, knowledge and skills required in modern cancer survivorship care in Australia and the world.
- Identify principles underpinning contemporary approaches to cancer survivorship care
- Identify core knowledge and skills required for health professionals to provide survivorship care
Key elements of cancer survivorship care learning activity
Key elements of cancer survivorship care quiz
DH, Macmillan Cancer Support & NHS Improvement. The National Cancer Survivorship Initiative Vision. London: Department of Health; 2010.
Institute of Medicine and National Research Council of the National Academies. From Cancer Patient to Cancer Survivor: Lost in Transition, . Washington, D.C.: The National Academies Press; 2005. Available from: http://www.iom.edu/Reports/2005/From-Cancer-Patient-to-Cancer-Survivor-Lost-in-Transition.aspx.
Rechis R, Beckjord EB, Arvey SR, Reynolds KA, McGoldrick D. The Essential Elements of Survivorship Care: A LIVSTRONG Brief. 2011.
McCabe MS, Bhatia S, Oeffinger KC, Reaman GH, Tyne C, Wollins DS, et al. American Society of Clinical Oncology Statement: Achieving High-Quality Cancer Survivorship Care. Journal of Clinical Oncology [serial on the Internet]. 2013: Available from:http://jco.ascopubs.org/content/early/2013/01/07/JCO.2012.46.6854.short?....
National Comprehensive Cancer Network. NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines) Survivorship Version 1.2013. 2013.
Australian Cancer Survivorship Centre. Australian Cancer Survivorship Centre. 2010; Available from:http://126.96.36.199/cancersurvivorship/Home.
Lotfi-Jam K, Schofield P, Jefford M. What constitutes ideal survivorship care? Cancer Forum. 2009;33(3).
DH, Macmillan Cancer Support & NHS Improvement. Living with & Beyond Cancer: Taking Action to improve Outcomes (an update to the 2010 The National Cancer Survivorship Initiative Vision). 2013.
Lewis RA, Neal RD, Williams NH, France B, Hendry M, Russell D, et al. Follow-up of cancer in primary care versus secondary care: systematic review. British Journal of General Practice. 2009;59(564):e234-47.
Cancer Australia. Shared care - Principles of shared care. 2013.
Western Health. Breast Cancer Shared Care. Available from:http://www.westernhealth.org.au/GP_Liaison/Shared_Care/Breast_Cancer_Sha....
Whitehorse Division of General Practice. Navigating self-managment. A practical approach to implementation for Australian health care agencies. 2007.
Yates P, McCarthy A, Anderson D, Hausmann S, Salkield G, Walpole E, et al., editors. Development, implementation and evalaluation of a cancer survivor self-management care plan. COSA Annual Scientific Meeting; 2011; Perth.
Australian Cancer Survivorship Centre. Models for survivorship care. 2010; Available from:http://188.8.131.52/cancersurvivorship/DesignofFollow-upCare.
Chapman K, Wiernikowski J. Adult Cancer Survivorship. A Self-Learning Resource for Nurses: CANO ACIO; 2011. Available from: http://www.cano-acio.ca/~ASSETS/DOCUMENT/CANO_Survivorship%20Module__.pdf.
Lewis RA, Neal RD, Williams NH, France B, Wilkinson C, Hendry M, et al. Nurse-led vs. conventional physician-led follow-up for patients with cancer: systematic review. Journal of Advanced Nursing. 2009;65(4):706-23.
Macmillan Cancer Support. Stratified Pathways of Care. 2013; Available from:http://www.ncsi.org.uk/what-we-are-doing/risk-stratified-pathways-of-care/.
NHS Improvement Cancer. Innovation to implementation: Stratified pathways of care for people living with or beyond cancer. A 'how to guide'. In: NHS, editor.2013.
National Cancer Surviviorship Initiative (NCSI). Designing and implementing pathways to benefit patient aftercare: Continuing to build the evidence. NHS Improvement Cancer; 2011.
National Health Priority Action Council (NHPAC). National Chronic Disease Strategy. Canberra: Australian Government Department of Health and Ageing; 2006.
Flinders Human Behaviour and Health Research Unit. Capabilities for Supporting Prevention and Chronic Condition Self-Management: A Resource for Educators of Primary Health Care Professionals. Canberra: Commonwealth of Australia; 2009.
Downie P, Skinner S, Williamson J. Long Term Follow Up Program Model of Care. New directions in Victoria, Australia. 2010.
Australian Cancer Network Diagnosis and Management of Lymphoma Guidelines Working Party. Guidelines for the Diagnosis and Management of Lymphoma. Sydney: The Cancer Council Australia and Australian Cancer Network; 2005.
Aleman BMP, van Leeuwen FE. Are We Improving the Long-Term Burden of Hodgkin's Lymphoma Patients with Modern Treatment? Hematology/Oncology Clinics of North America. 2007;21(5):961-75.
Chow LML, Nathan PC, Hodgson DC, Jenkin D, Weitzman S, Grant RM, et al. Survival and Late Effects in Children With Hodgkin's Lymphoma Treated With MOPP/ABV and Low-Dose, Extended-Field Irradiation. Journal of Clinical Oncology. 2006 December 20, 2006;24(36):5735-41.
Friedman DL, Constine LS. Late Effects of Treatment for Hodgkin Lymphoma. Journal of the National Comprehensive Cancer Network. 2006 March 1, 2006;4(3):249-57.
Ng AK. Review of the cardiac long-term effects of therapy for Hodgkin lymphoma. British Journal of Haematology. 2011;154(1):23-31.
Fernsler J, Fanuele JS. Lymphomas: long-term sequelae and survivorship issues. Seminars in Oncology Nursing. 1998;14(4):321-8.
Wolff N. The burden of cancer survivorship; a pandemic of treatment success. In: Feuerstein M, editor. Handbook of cancer survivorship. New York: Springer; 2006.
Hollen PJ, Hobbie WL, Finley SM. Cognitive late effect factors related to decision making and risk behaviors of cancer-surviving adolescents. Cancer Nursing. 1997;20(5):305-14.
National Cancer Action Team. Holistic Needs Assessment for people with cancer. A practical guide for healthcare professionals. NHS.
- Royal College of Nursing. Competences: An integrated career and competence framework for nurses working in the field of long-term follow-up and late effects care of children and young people after cancer. London: Royal College of Nursing; 2011.
- Livestrong essential elements3
- National Cancer Survivorship Initiative
- American Society of Clinical Oncology (ASCO) Statement: Achieving High-Quality Cancer Survivorship Care 4
- National Comprehensive Cancer Network (NCCN) Clinical Practice Guidelines in Oncology survivorship V1.2013 5
- Australian Cancer Survivorship Centre6
Service delivery approaches
- Bauman A et al. 2003. Getting it right: why bother with patient-centred care? Medical Journal of Australia 179(5).
- Beaver K et al. 2009. Comparing hospital and telephone follow-up after treatment for breast cancer: randomised equivalence trial. BMJ; 338: a3147
- Brennan M & Jefford M 2009. General practitioner-based models of post-treatment follow up. Cancer Forum 33(3).
- Frew G et al. 2010. Results of a quantitative survey to explore both perceptions of the purposes of follow-up and preferences for methods of follow-up delivery among service users, primary care practitioners and specialist clinicians after cancer treatment. Clinical Oncology (R Coll Radiol) Jul 6.
- Gates P & Krishnasamy M 2009. Nurse-led survivorship care. Cancer Forum 33(3).
- Hewitt M, Greenfield S, Stovall E (eds) 2006. From cancer patient to cancer survivor: lost in transition. Committee on Cancer Survivorship: Improving Care and Quality of Life. National Cancer Policy Board. Institute of Medicine (IOM) and National Research Council of the National Academies.
- Hopkins J & Mumber M 2010. Patient navigation through the cancer care continuum: an overview. Journal of Oncology Practice.
- Jacobs L et al. 2009. Adult cancer survivorship: evolution, research, and planning care. CA: A Cancer Journal for Clinicians; 59: 391-410.
- Kimman M et al. 2010. Follow-up after treatment for breast cancer: one strategy fits all? An investigation of patient preferences using a discrete choice experiment. Acta Oncology Apr; 49(3): 328-37.
- Krishnasamy M et al. 2010. Patient expectations and preferences for follow-up after treatment for lung cancer: a pilot study. European Journal of Oncology Nursing Feb 15.
- Lewis et al 2009. Patients' and healthcare professionals' views of cancer follow-up: systematic review. British Journal of General Practice 59(564): e248-59.
- Lewis R et al 2009. Nurse-led vs. conventional physician-led follow-up for patients with cancer: systematic review. Journal of Advanced Nursing; 65(4): 706-723.
- McAvoy B 2007. General practitioners and cancer control. Medical Journal of Australia 187(2).
- Mayer, E.L. et al. 2012. Breast Cancer Survivors’ Perceptions of Survivorship Care Options. Journal of Clinical Oncology; 30(2): 158-163
- Oeffinger K & McCabe M 2006. Models for delivering survivorship care. Journal of Clinical Oncology; 24(32): 5117-24.
- Stewart et al 2000. The impact of patient-centered care on outcomes. Journal of Family Practice, July 4.
- Innovation to implementation: Stratified pathways of care for people living with or beyond cancer. A ‘how to guide’. NHS Improvement Cancer, 2013
Professional development recommendations, frameworks, and capabilities
- Capabilities for Supporting Prevention and Chronic Condition Self-Management: A Resource for Educators of Primary Health Care Professionals. Flinders Human Behaviour and Health Research Unit.
- Educating Cancer Health Care Professionals: Fact Sheet. Institute of Medicine of the National Academies
- An integrated career and competence framework for nurses working in the field of long-term follow-up and late effects care of children and young people after cancer. Royal College of Nursing; London21
- Supporting chronic disease self-management: translating policies and principles into clinical practice
Professional development resources
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