This module will provide an overview of the key elements and evidence based tools and resources to support survivorship care. The specific elements reviewed in this module do not provide an exhaustive list and they are not mutually exclusive. They have been selected to provide exemplars of strategies that you may find useful in providing survivorship care.
- Identify tools and resources to implement the following elements of survivorship care:
- therapeutic communication
- framework for supportive care
- multidisciplinary care
- survivorship care plan
- shared care
- Identify processes for improving the quality of cancer survivorship care.
Toolbox for providing cancer survivorship care learning activity
Toolbox for providing cancer survivorship care quiz
Uitterhoeve RJ, Bensing JM, Grol RP, Demulder PHM, Van Achterberg T. The effect of communication skills training on patient outcomes in cancer care: a systematic review of the literature. European Journal of Oncology Nursing. 2010;19:442-57.
Gilbar O, Neuman R. Which cancer patient completes a psychosocial intervention program? Psycho-oncology. 2002;11:461 - 71.
Feldman-Stewart D, Brundage MD, Tishelman C, Team. SC. A conceptual framework for patient-professional communication: an application to the cancer context. Psychooncology. 2005;14(10):801-9.
Andreassen S, Randers I, Naslund E, Stockeld D, Mattiasson AC. Family members' experiences, information needs and information seeking in relation to living with a patient with oesophageal cancer. European Journal of Cancer Care. 2005;14(5):426-34.
Ryan H, Schofield P, Cockburn J, Tattersall M, Turner J, Girgis A, et al. How to recognize and manage psychological distress in cancer patients. European Journal of Cancer Care. 2005;14(1):7-15.
National Cancer Action Team. Holistic Needs Assessment for people with cancer. A practical guide for healthcare professionals. NHS.
Turner J, Clavarino A, Yates P, Hargraves M, Connors V, Hausmann S. Enhancing the supportive care of parents with advanced cancer: Development of a self-directed education manual. European Journal of Cancer. 2008;44:1625-31.
Dimoska A, Girgis A, Hansen V, Butow PN, Tattersal MHN. Perceived difficulties in consulting with patients and families: a survey of Australian cancer specialists. MJA. 2008;11(12):612-5.
Fitch M. Supportive care for cancer patients. Hospital quarterly. 2000;3(4):39 - 46.
Victorian Government Department of Human Services. Providing optimal cancer care: supportive care policy for Victoria. Melbourne: Metropolitan Health and Aged Care Services Division; 2009.
Fitch M. Supportive care framework: theoretical underpinnings. In: Fitch M, Porter H, Page B, editors. Supportive care framework: A foundation for person-centred care. Pembroke: Pappin Communications; 2008.
Supportive Cancer Care Victoria. Framework for Professional Competency in the Provision of Supportive Care. Supportive Care Victoria Project; 2011.
Supportive Cancer Care Victoria. Facilitator Manual. Supportive Care Screening Communication Skills Case Studies. Supportive Cancer Care Victoria Project & the Victorian Cancer Council; 2011.
DeBoer AGEM, Taskila TK, Tamminga SJ, Frings-Dresen MHW, Feuerstein M, Verbeek JHAM. Interventions to enhance return-to-work for cancer patients. Cochrane Database of Systematic Reviews. 2011(2).
National Cancer Action Team. Cancer Rehabilitation: Making excellent cancer care possible. 2013.
Rechis R, Beckjord EB, Arvey SR, Reynolds KA, McGoldrick D. The Essential Elements of Survivorship Care: A LIVSTRONG Brief. 2011.
Supportive Cancer Care Victoria. Understanding roles in the Multidisciplinary Team.
Australian Cancer Survivorship Centre. Survivorship care planning. 2010; Available from:http://220.127.116.11/cancersurvivorship/SurvivorshipCarePlanning.
Institute of Medicine and National Research Council of the National Academies. From Cancer Patient to Cancer Survivor: Lost in Transition, . Washington, D.C.: The National Academies Press; 2005. Available from: http://www.iom.edu/Reports/2005/From-Cancer-Patient-to-Cancer-Survivor-L....
National Cancer Surviviorship Initiative (NCSI). Designing and implementing pathways to benefit patient aftercare: Continuing to build the evidence. NHS Improvement Cancer; 2011.
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A National Coalition for Cancer Survivorship and Institute of Medicine National Cancer Policy Forum Workshop, The Lance Armstrong Foundation and The National Cancer Institute, Hewitt M, Ganz PA, Rapporteurs. Implementing Cancer Survivorship Care Planning. Washington, D.C.: The National Academies Press; 2007. Available from:http://www.nap.edu/catalog.php?record_id=11739.
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National Comprehensive Cancer Network. NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines) Survivorship Version 1.2013. 2013.
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- Cancer Learning - Communication Skills Resources
- Supportive Cancer Care Victoria Communication Skills Video Training Resources - The 8 video case studies and accompanying Facilitator Manual aim to supplement current supportive cancer care education resources and focus on improving clinician’s communication skills when undertaking a discussion of supportive care needs with people affected by cancer
Cancer Australia Frontline Psychosocial Support Tutorial – free of charge, registration required, video tutorial that focuses on anger, distress and depression management
- IPOS Online Curriculum Communication and Interpersonal Skills in Cancer Care - US based on-line International Psycho-oncology Society (IPOS) presentation
- IPOS Online Curriculum Psychosocial Assessment in Cancer Patients - US based on-line International Psycho-oncology Society (IPOS) presentation
Framework for supportive care
- Cancer Learning Multidisciplinary Care Resources
- Cancer Learning Multidisciplinary Care(MDC) Toolkit
- Understanding roles in the Multidisciplinary Team17 (Supportive Cancer Care Victoria)
Survivorship Care Plans
- Australian Cancer Survivorship Centre Survivorship Care Planning
- IOM Cancer survivorship care planning factsheet
- National Coalition for Cancer Survivorship “Planning your care”
- Memorial Sloan-Kettering Cancer Centre “Survivorship Care Plan”
- ASCO Cancer Treatment Summaries
- Journey Forward Survivorship Care Plan Builder (for oncology professionals)
- Livestrong care plans
- National Cancer Survivorship Initiative Treatment Summary
- Implementing Cancer Survivorship Care Planning22
- NCSI Treatment Summary User guide and template
- Macmillan (2011) Treatment Summary: A tool to improve Communication between cancer services and primary care
- Cancer Australia Shared follow-up care
- Moving Beyond Patient Satisfaction: Tips to Measure Program Impact
- Determining research priorities for cancer survivorship: consultation and evidence review, National Cancer Survivorship Initiative
- Navigating self-management. A practical approach to implementation for Australian health care agencies – Section 5. Evaluating self-management
- Quality of Life of Cancer Survivors in England. Report on a pilot survey using Patient Reported Outcome Measures (PROMS)
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